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This film follows a family's passionate, acerbic and relentlessly
hopeful reaction to a disease that transforms their lives.
When he was 29 years old, Stephen Heywood was diagnosed with ALS -
also called Lou Gehrig's disease - and told he had two to five
years to live. But Stephen and his family refused to accept the
doctors' death sentence. "So Much So Fast" follows the Heywoods'
passionate, acerbic and relentlessly hopeful reaction to a disease
that transforms their lives. Stephen's older brother, Jamie, starts
a foundation dedicated to finding a cure through fast-paced
guerrilla science that attracts both praise and controversy.
Stephen gets married and he and his wife, Wendy, have a son. They
confront the encroaching paralysis of ALS with a mix of courage and
humor, and, surrounded by friends and family, upend the
clichés of their situation. From Oscar-nominated
("Troublesome Creek") filmmakers Steven Ascher and Jeanne Jordan,
"So Much So Fast" tells a haunting story of one family's unexpected
answers to some of life's biggest questions.